Welcome to Collin’s Quest. Why do we call this journey a quest? It was a Quest for answers. Now, this is a Quest to deal with the issues of Devic’s Disease (Neuromyelitis optica – NMO) This is also a quest to find and help others who have been stricken with a Demyelinating Disease.
March 5th, 2008 Collin was diagnosed with Devic’s Disease by the Center for Pediatric Onset Demyelinating Diseases (CPODD) at the University of Alabama in Birmingham. Now we are struggling to deal with this devastating diagnosis and everything that comes with it.
Collin’s battle with NMO has been a long journey. We are now at a new stage of this Quest. We are not even sure what his disease is. All we now it has taken a once healthy young boy to a very sick kid. Through all this he is a Super Hero.
Collinsquest.org is now a tribute to our “Super Hero”.
On Thursday March 29th 2012 Collin made his final Super Hero Flight.Collin went to be with Jesus and is no longer in any pain or suffering. He is now running and playing like every 9 year old little boy should be. As his parents we are so blessed to have had him with us for these 9 years. The last 4 & 1/2 were difficult. Even as difficult as they were Collin was his happy wonderful self. Many people have been touched by his life and many more will be. To everyone that has known Collin either in person our through Collinsquest I know he has touched you in a very special way. Please continue to keep his memory alive. And thank you to everyone that has participated in Collins life. Each and everyone mean so much to us.
For more information on this disease please visit Spectrum – an NMO Community. There is a wealth of information and a great source of support for those dealing with this terrible disease. It is part of the Guthy Jackson Charitable Foundation who is funding research to find a cure for NMO.